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ALS Worldwide

Pictured above from left to right are Stephen Byer, Sue Carlson, and Barbara Byer at a gathering of people who support the efforts of ALS Worldwide.

ALS WORLDWIDE, created by Stephen and Barbara Byer, is a not for profit organization for ALS patients and their families to obtain information, advice, direction, support, guidance and, perhaps, most importantly, hope.   ALS (amyotrophic lateral sclerosis) is a devastating disease of the nervous system that causes slow decline and loss of function as the nerves lose their ability to transmit signals.  People who are diagnosed with this awful disease, also known as Lou Gehrig's disease, are facing a terminal diagnosis. The Byers' have coped with ALS first hand.  They lost their son, Ben, to the disease on July 3, 2008.

In honor of their son, the Byers now dedicate their time and energy to ALS patients and their families to help them adapt and support their loved ones affected by ALS.  Their ultimate goal, of course, is to see a day when ALS can be managed as a chronic long-term illness or even cured.

ALS WORLDWIDE brings the needs of the ALS community to the awareness of the public, the political system and the media.  Getting Iplex and Increlex, two experimental but effective medications, to those with ALS are examples of this groups efforts in these areas.  ALS Worldwide also acts as a resource for patients who are considering treatments in other countries to be sure they are fully informed in their medical decision-making processes.

Please visit the ALS Worldwiide web site to learn more about ALS, ALS World Wide, and the selfless and powerful work being done by Barbara and Stephen. http://www.alsworldwide.org.

Thank you, Barbara and Stephen, for your commitment and passion for improving the lives of ALS patients and their loved ones.